Resources

Useful links to resources based around some of the major areas of need in DDX3X syndrome.

Communication:

Sensory:

Sensory toys and equipment:

Cerebral Visual Impairment (CVI):

Violent and Challenging Behaviour

Lots of useful advice and information based on real life experience.
https://yvonnenewbold.com

The Challenging Behaviour Foundation provides an abundance of information along with a Family Support Service.
https://www.challengingbehaviour.org.uk

‘The Unique Guide to Behaviour’ PDF

Sleep

Seizures

A useful description of different types of seizures
https://www.epilepsysociety.org.uk/seizure-types#.XIobrBqnyhA

How childhood epilepsy syndromes are diagnosed, details of some specific syndromes and sources of further support.
https://www.epilepsysociety.org.uk/childhood-epilepsy-syndromes#.XIocIRqnyhA

Miscellaneous

Join our Facebook Group

Facebook

Join the DDX3X Registry

Contribute to research into this rare condition.

Join Here

Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.