Useful links to resources based around some of the major areas of need in DDX3X syndrome.

This explains about expressive and receptive language
https://www.mentalhealth.org.uk/learning-disabilities/a-to-z/c/communicating-people-learning-disabilities

Communication and challenging behaviour
https://www.challengingbehaviour.org.uk/learning-disability-files/04—Communication-Information-sheet-web.pdf

Some communication tools and approaches that may be useful
http://www.bild.org.uk/EasySiteWeb/GatewayLink.aspx?alId=3338

https://www.ican.org.uk

http://www.1voice.info

https://www.communicationmatters.org.uk

A parent’s perspective (UK)
http://thesensoryseeker.com/does-your-child-have-sensory-processing-disorder/

A parent’s perspective (America)
http://www.sensorymom.com

This video provides a good explanation of sensory processing disorder
https://www.facebook.com/sensoryspectacle/videos/253790405309992/

Sensory integration education
https://www.sensoryintegration.org.uk

Sensory processing disorder checklist
https://www.sensory-processing-disorder.com/sensory-processing-disorder-checklist.html

https://www.sensory-processing-disorder.com/sensory-processing-disorder-blog.html

http://www.spdsupport.org/aboutus/index.shtml

https://bibic.org.uk

https://www.brainwave.org.uk

https://cvisociety.org.uk

https://cviscotland.org

http://www.thecviproject.co.uk

‘The Unique Guide to Sleep Problems’ PDF

The Cerebra Sleep Service
https://www.cerebra.org.uk/help-and-information/sleep-service/

Helping Your Child Sleep – Contact a Family Leaflet
https://contact.org.uk/media/1183103/helping_your_child_sleep.pdf

‘The Unique Guide to Grants and Funding’ PDF

‘The Unique Guide to Supporting Siblings of Children with a Rare Chromosome Disorder’ PDF