Useful links to resources based around some of the major areas of need in DDX3X syndrome.

Violent and Challenging Behaviour

Lots of useful advice and information based on real life experience.

The Challenging Behaviour Foundation provides an abundance of information along with a Family Support Service.

‘The Unique Guide to Behaviour’ PDF


A useful description of different types of seizures

How childhood epilepsy syndromes are diagnosed, details of some specific syndromes and sources of further support.

Join our Facebook Group


Join the DDX3X Registry

Contribute to research into this rare condition.

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