Useful links to resources based around some of the major areas of need in DDX3X syndrome.
This explains about expressive and receptive language
Communication and challenging behaviour
Some communication tools and approaches that may be useful
A parent’s perspective (UK)
A parent’s perspective (America)
This video provides a good explanation of sensory processing disorder
Sensory integration education
Sensory processing disorder checklist
Violent and Challenging Behaviour
The Cerebra Sleep Service
Helping Your Child Sleep – Contact a Family Leaflet
A useful description of different types of seizures
How childhood epilepsy syndromes are diagnosed, details of some specific syndromes and sources of further support.
Join our Facebook Group
Join the DDX3X Registry
Contribute to research into this rare condition.
Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.